CHDI
New Enroll-HD clinical dataset now available
December 18, 2018 – A new data cut from the Enroll-HD observational study, named periodic dataset 4 (PDS4), was made available for download to any interested researcher on December 14, 2018. PDS4 comprises data from 15,301 participants, representing approximately 80% of the total number of participants. The PDS4 file structure is the same as the previous dataset, PDS3 Plus, and contains additional longitudinal data from 3,802 Enroll-HD participants who also took part in the REGISTRY study. There is also clinical data for some participants collected in ad hoc visits prior to their Enroll-HD/REGISTRY study participation. As a guide to the longitudinal nature of PDS4, participants who are only taking part in Enroll-HD have up to 6 visits, those in Enroll-HD plus REGISTRY have up to 20 visits, and those who were part of Enroll-HD and REGISTRY plus ad hoc data have up to 32 visits. Read more…